Repository of project outputs
Developing a new patient-centred cancer care model
Policy recommendations for adopting the patient-centred model and guidelines
It is envisaged that implementing the PCCC model would have positive consequences also for broader society. With its focus on patient needs new jobs and positions are to be developed. In order to provide care in all stages of the disease new e-Health tools and various forms of Social Entrepeneurship are to be employed. At the same time, successful implementation of the PCCC model is dependent on numerous broader social circumstances outside of the sphere of influence of existing healthcare organizations and policies in the field of cancer care need to be tackled as well. Current state of these policies was detailed in the Report on policy mapping across the five pilot regions. Hereby, Policy Recommendations for adopting the patient-centred model and guidelines before you are integrating findings from Implementaion guidelines for the PCCC model and Report on policy mapping and thus summarizing them in the form of recommendations for policy makers, aiming to foster PCCC model.
A Patient Centred Cancer Care model and implementation guidelines in Central Europe
The present document aims to describe a Patient Centred Cancer Care (PCCC) model that was developed during the completion of WP1 of the INTENT project in five regions of the central Europe (i.e Jihovychod-CZ06, Friuli Venezia Giulia-ITH4, Veneto-ITH3, Zahodna Slovenjia-SI02 and Közép-Magyarország-HU10). The document contains two parts: 1. The PCCC model, which is made of recommendations aiming to increase the patient centeredness in the existing cancer care models in the public health organizations of the Central Europe. These recommendations can be also applied to the private sector; 2. The implementation guidelines, which is a SWOT (Strength, Weaknesses, Opportunities and Threats) analysis of each section of the PCCC model and a guided analysis which provide hints on how to overcome Weaknesses or Threats by leveraging Strengths and Opportunities of the organizations.
New indicator sets for the online benchmarking tool
Integration of new indicator sets into online benchmarking tool
Based on discussion among all involved project partners, a final multidimensional set of indicators has been defined. Questions for particular target groups were formulated in order to be included in survey and analysed using the online benchmarking tool as a part of the pilot action.Design of the survey is to be specified as a part of the particular pilot action.
Developing and using the benchmarking tool
Description of the benchmarking tool and its functionalities
The document provides overview of functions of the benchmarking tool and guides a user through the system.
Benchmarking methodological manual
The document describes a methodology of the calculation of final benchmarking values from the questions and answers of the survey in particular dimensions and target groups.
Assessing pilot sites preparedness to pilot guidelines and online benchmarking tool
Assessing the readiness of each pilot site to test work package (WP) outputs
The goal was to assess the readiness of each pilot site to test the new patient centred model of care and guidelines as well as the capacity of the local information systems to generate data for the adapted benchmarking tool and the potential IT changes needed. In order to achieve this, the two below surveys were conducted among the INTENT project partners:
- Radar Axis Chart Survey at the INTENT project pilot sites
- Assessment of local ICT capacities at the INTENT project pilot centres
The questionnaires served as self-assessment tools for the pilot sites to assess the current level of patient-centredness at their institute in connection with the six dimensions of the patient-centred cancer care model (PCCCM) as well as the ICT capabilities to provide the data for the benchmarking exercise. The six dimensions of the model are:
- Patient Centred Culture
- Information Communication Education
- Accessibility and Continuity of Care
- Shared Decision Making & Multidisciplinary Approach
- Enhancing Quality of Life
- Research
Open document – Radar Axis Chart Survey at the INTENT project pilot sites Open document – Assessment of local ICT capacities at the INTENT project pilot centres
Local stakeholder panel assessment form
At each pilot site, a stakeholder panel was set up to contribute to the tasks and activities related to the development and benchmarking of a patient centred model of care.
The members of the local stakeholder panels represented various disciplines to ensure that all aspects of the patient centred model of care were taken into consideration when developing both the model of care and the corresponding benchmarking indicators. The panel members at each pilot site included: a Manager, a Clinician, a Policy Maker and a Patient Representative. The INTENT project coordinators at the local pilot sites have informed the members of the panel of the specific tasks related to INTENT and acted as a point of contact between the panel members and the WP leaders of INTENT.
Testing the tools
Translation of benchmarking results into Performance Improvement Plans
Piloting was key to assessing how practical the patient-centred cancer care model and online benchmarking tools were in implementing a patient-centred approach in Central Europe. Each pilot site had a different starting point that influenced the conduct, results and consequences of their benchmarking exercise. Each pilot was led by a stakeholder panel that decided how to set up the pilot locally. They either focused on a specific department, care pathway or the whole organization depending on their resources and size of the organization.
The pilot sites of the INTENT project participated in the piloting exercise using the benchmarking tool (5 sets of questionnaires) addressing the following stakeholders (target groups): 100 patients, 5 expert patients, 10 doctors, 10 nurses, 1 manager. The benchmarking tool was developed around the 6 dimensions of the patient centred model of care.
The document titled “Translation of benchmarking results into Performance Improvement Plans” was developed using the Plan-Do-Check-Act model (PDCA cycle) to create the Performance Improvement Plans using the benchmarking data.
The first step of the PDCA cycle was to ‘plan’, which means the translation of benchmarking results into Performance Improvement Plans in the context of the INTENT project. The step ‘plan’ includes the following 5 steps:
- Step 1 Analyze the benchmarking results,
- Step 2 Summarize the strengths, weaknesses and improvement points in one table,
- Step 3 Select one improvement point and fill out the provided Performance Improvement Plan (PIP) Template using the „D.T1.3.1 A Patient Centred Cancer Care Model and Implementation guidelines in the Central Europe” document,
- Step 4 Perform a SWOT analysis strengths, weaknesses, opportunities and threats related to the selected improvement point using „D.T1.3.1 A Patient Centred Cancer Care Model and Implementation guidelines in the Central Europe” document,
- Step 5 Local Stakeholder Panels at the pilot site approve the PIP and provide feedback on the piloted tool.
Benchmarking results analysis tables
The aim was to summarize the strengths, weaknesses and improvement points pertaining to the 5 target groups (patients, expert patients, doctors, nurses, manager) for each of the 6 dimensions (Step 2). This template -overall 7 tables- was filled out by the INTENT pilot sites based on the benchmarking results and process of the exercise. An Overall Summary table was filled out, as well according to the 6 dimensions which summarizes the improvement points.
Performance Improvement Plan template
After the “Benchmarking results analysis tables” document was completed, the Performance Improvement Plan (PIP) template was filled out by the INTENT pilot sites to select one improvement point by using the „D.T1.3.1 A Patient Centred Cancer Care Model and Implementation guidelines in the Central Europe” document (Step 3).
SWOT template
The goal was to perform a SWOT analysis (strengths, weaknesses, opportunities and threats) at the pilot sites related to the selected improvement point using „D.T1.3.1 A Patient Centred Cancer Care Model and Implementation guidelines in the Central Europe” document for the particular dimension (Step 4).
Good example template on patient-centred care
The good examples included in the Virtual Know-How Centre were submitted by the pilot sites based on their self-assessment and also based on the highest scores of the benchmarking data. The highest scores for the sites were categorized according the 6 dimensions of the patient centred care model. The template was used by the pilot sites to draft their good examples.
Survey on using the benchmarking tool
In the first piloting phase (February 17 - March 31) feedback was collected on administering the benchmarking tool (5 sets of questionnaires) at piloting sites addressing the following stakeholders (target groups): 100 patients, 5 expert patients, 10 doctors, 10 nurses, 1 manager. In this survey, the experience of piloting the benchmarking tool was evaluated, both in terms of improving the processes and the content of the tool itself.
Survey on the use of the implementation guidelines and the benchmarking tool
This Survey includes the evaluation of results of the second piloting phase. Piloting experience of the pilot sites was assessed in the second phase of the piloting (June 1- October 31) as well, and a second survey was developed and evaluated in the following three areas:
- use of the background guidelines and the online benchmarking tool,
- use of the implementation guidelines,
- overall assessment of the piloting process.